Listed below are the most commonly asked questions regarding autism. In case you have an important question to ask, don't hesitate to submit it.
Autism, part of a group of disorders known as Autism Spectrum Disorders (ASD), is a complex neurobiological disorder that typically lasts throughout a person's lifetime. The disorder is characterized by varying degrees of impairment in communication skills and social abilities including repetitive behaviors. Symptoms range from mild to severe. One milder form of the disorder is known as Asperger Syndrome. Other developmental disorders that fall under the Autism Spectrum Disorders include Rett Syndrome, Pervasive Developmental Disorder (PDD NOS), and Childhood Disintegrative Disorder (CDD). Parents are usually the first to notice unusual behaviors in their child or their child's failure to reach appropriate developmental milestones. Some parents describe a child that seemed different from birth, while others describe a child who was developing normally and then lost skills. If you have concerns about your child's development, do not wait. Speak to your pediatrician about getting your child screened for Autism.
No two autistic kids are alike, but there are some signs that many of them share and that experts agree may be as recognizable as early as the toddler years, or even sooner. Children on the spectrum generally have difficulty relating to others; they may hardly speak, and if they do, they may not communicate in ways that other people can easily understand (they may screech loudly when they're upset, for example, instead of crying). They do not usually sustain eye contact as it's too intense for them, and they have trouble reading social cues. They are also prone to repetitive behaviors, flapping their hands constantly or uttering the same phrase over and over again. They may also be more sensitive than a normal typical developing child, or dramatically less so, to sights, sounds and touch.
Autism is a spectrum disorder, which means it manifests itself in many different forms. A diagnosis can range from mild to severe, and though children who have it (i.e. are on the spectrum) are likely to exhibit similar traits, they are also as individual and different as the colors of a rainbow, each one managing a grab bag of symptoms. While one child may rarely speak and have difficulty learning how to read and write, another child may be high-functioning and able to attend classes in a mainstream school. Yet another child may be so sensitive to the feel of fabric that all tags must be cut off before he wears a piece of clothing, while his friend who is also autistic may not have any sensory issues at all.
No one knows for sure. Though it's understandable to expect that a disorder as common as autism would have a known cause, in many ways it's still quite mysterious. Recent studies suggest a strong genetic basis for autism -- up to 20 sets of genes may play a part in its development. Genetics alone, however, can't account for all the cases, and so scientists are also looking into possible environmental origins, as well as other triggers.
Unfortunately, experts have been unable thus far to come up with a cure for Autism. Many treatments have surfaced since the disorder has grown more visible in the mainstream press, but reputable doctors have yet to agree on any that will reverse the diagnosis. But there's hope: Scientists are hard at work every day finding a solution for this growing problem. While advocacy groups have said for years that lack of funding for research is to blame for the lack of definitive answers, a bill known as the Combating Autism Act, which would funnel millions of dollars to developing a cure, is now wending its way through Congress. Until such cure is discovered, parents have been relying on early intervention programs such as Applied Behavior Analysis, or ABA, and play therapy to mitigate the behaviors associated with Autism. For some, these treatments have proven to be successful, helping kids on the spectrum lead a full and active life.
Don't wait--talk to your doctor about getting child screened for autism. New research shows that children as young as one may exhibit signs of autism, so recognizing early signs and knowing developmental milestones is important. Early intervention is key.
You can start by making sure he has a reputable healthcare team by his side. That means finding doctors, therapists, psychologists and teachers who understand and have experience with autism and can respond to his shifting needs appropriately. Ask your child's pediatrician to recommend a developmental pediatrician with whom you can consult about the next step. She, in turn, can guide you toward various intervention programs and suggest complementary therapies. It also helps to plug into an already existing network of parents facing the same challenges as you.
First, be kind to yourself. It's not easy to recover from the shock of learning your child has a developmental disorder that has no known cause or cure. Accept any and all feelings the diagnosis may elicit, and try not to blame yourself: It would've been impossible for you to figure out a way to shield your child from autism completely. The next step is to arm yourself with all the facts about the disorder. Knowledge is power, and the more you know, the more capable you'll feel about navigating the daunting autism gauntlet. That said, it's also important to give yourself a “break” from autism when it becomes too overwhelming. And if you find that the diagnosis has been so crippling that you've been unable to get past it, consider talking to a counselor or therapist. You can't — and aren't expected to — weather this storm alone.
Most likely yes. Much depends on where your child falls on the spectrum, but with your support, as well as that of doctors, therapists and teachers, your child should be able to attend school. In fact, it's his right: According to the Individuals with Disabilities Act of 1990, which mentions autistic children specifically, your child deserves access to a “free and appropriate” education funded by the government, whether it be in a mainstream or special education classroom.